diete in terapii ptr autism

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diete in terapii ptr autism

Postby shakalu » Sun Oct 05, 2003 12:02 am

Dr. Rimland este unul din pionierii cercetarii stiintifice referitor la autism. La randul lui tatal unui copil autist cerceteaza autismul de mai bine de 40 si ceva de ani . In cea mai mare parte s-a ocupat de partea biologica a autismului si ce se poate face pentru ameliorarea starii celor afectati de autism pe cale biologica. De altfel dieta cu doze masive de vitamine ii apartine in exclusivitate. Este unul din cei mai respectati specialisti in domeniul autismului. Din pacate toate dietele si curele cu vitamine , s.a.m.d au numai rezultate partiale - in 50% din cazuri amelioreaza starea celor afectati de autism si sunt departe de a vindeca. De altfel cred ca va mai dura multi ani pana cand o sa existe un medicament sau o alta cale biologica ca sa vindece autismul. Puteti incerca oricare din diete personal am incercat-o pe cea fara caseina si fara gluten pentru fiul meu si la vremea respectiva ( el avea cam 2 ani si vro 8 luni si noi am tinut-o vreo 2 luni) a existat o ameliorare a starii lui. Nu insa asa de tare incat sa ne motiveze sa o facem in continuare ; ceea ce stim insa este ca sunt multe cazuri in care unele din aceste terapii biologice au rezultate deosebite in ameliorarea starii generale a unui copil afectat de autism - in general rezultatele spectuculoase se obtin la cazurile spectaculoase ( aici ma refer la copii a caror stare este una foarte proasta fie ca ne referim la auto stimulare , la agitatie , la crize de isterie sau la automutilare ).
Cu toate astea , cu exceptia poate a dietei fara caseina si fara gluten ( care oricum este dura prin ea insasi - nu trebuie sa-i dati copilului nici un fel de produs care are in compozitie lapte sau faina - nu bomboane , nu ciocolata , nu prajituri , nu paine , nu , nu , nu........) pentru fiecare din celelalte diete este cazul sa incercati sa aveti supraveghere medicala ( o sa fie greu sa gasiti pe cineva care sa va ajute pentru ca marea majoritate habar nu au despre ce vorbiti si peste asta sunt "specialisti" - ce dreaq puteti sa-i spuneti voi lor si ei sa nu stie?!- dar cautati , o sa fiti suprinsi sa gasiti si medici in mintile lor . In rest aveti aici cele mai importante incercari de tratare biologica a autismului poate cu exceptia tratamentului pentru eventuala intoxicatie cu mercur care va fi next . Sper ca la fel ca la altele sa existe si traducerile cat de curand.

Since the 1960s, when interest in the effects of diet and vitamins on the treatment of autism began, there has been much research carried out in this area, although not necessarily into all diets and vitamins which could be of use. As with all approaches to treating autism it is important to remember that some will work with varying degrees of success in one person, while not having any effect at all for another. It is also important to stress that while experimenting with vitamins and supplements is unlikely to result in any serious side-effects, consultation with your doctor or a professionally qualified dietician on any change of diet is strongly recommended. There are several organisations that can help with a decision to use vitamins or diets in treating autism and Asperger syndrome and it would be useful to consult these.

Who could benefit?
Since the 1960s when Dr Bernard Rimland initiated research into the use of a high dose vitamin B6 alongside a normal dose magnesium a high proportion of people on the autistic spectrum have benefited from taking more vitamin B6. It is important however, to recognise that only those on the autistic spectrum with a need for Vitamin B6 in particular will benefit from this treatment.
How successful has this diet proved? Have any studies been carried out?
There have been around 20 published studies since 1965 and vitamin B6 has proved beneficial to around 50% of those involved. It is not fully understood why vitamin B6 is useful in this way. If the treatment is going to be useful then it should have an effect within a few days but if there is no change in three to four weeks it should be stopped.
Is this treatment safe?
Thousands of autistic children have been administered vitamin B6 since the 1960s without any signs of significant side-effects. However, in 1983, Schaumburg reported a small number of patients as suffering from numbness and tingling in the hands and feet due to peripheral neuropathy. It should be noted that these children were not taking magnesium which should always be used when taking such high doses
of vitamin B6 so as to prevent side-effects due to vitaminotherapy such as irritability, sound sensitivity, and
enuresis. Also, once the vitamin treatment was discontinued or markedly reduced, all adverse symptoms disappeared completely.
Where can I get them?
Health food shops and pharmacies supply vitamin B6 and magnesium supplements.

Who could benefit?
Vitamin C helps us all by enabling our brains to function properly although how it does this is still unknown. The symptoms of vitamin C deficiency include depression and confusion, both of which are symptoms common in autistic people. Therefore, the idea is that people with autism would
in some cases benefit from vitamin C supplements.
How successful has this diet proved? Have any studies been carried out?
Most people know that vitamin C is capable of fighting viruses and bacteria, but these are not its only benefits. Two studies into the effects of vitamin C supplements in autistic children are of particular interest. The first ever test was carried out in 1967 by Dr Bernard Rimland, where B3, B5, B6, and C were administered. In this test, the benefits of using vitamin C in autism were overshadowed by the apparent
effectiveness of vitamin B6. However, the dosage for vitamin C was very low (1 to 3 grams per day) and therefore it would be wrong to draw conclusions from this test. The second study of vitamin C in autism was initiated by Dolske et al in 1993. The study involved a thirty week double-blind placebo-controlled trial of 52mg/lb per day in 18 autistic children. The much higher dosage produced more favourable results.
Is this treatment safe?
Vitamin C has been taken in quite high doses without any major side effects. However, it can have a laxative effect and if this should happen then it should stop being administered. As with all these treatments it is essential that a medical professional is consulted.
Where can I get them?
Pleasant tasting vitamin C can be bought in most chemists.

Dimethylglycine (DMG)
Who could benefit?
DMG is a food supplement and therefore a prescription is not required. It is naturally found in some foods such as rice and liver, although only in small amounts. It has appeared to be helpful to children with communication problems, particularly those with minimal speech development.
How successful has this diet proved? Have any studies been carried out?
No official studies or trials have been carried out on DMG in autism or any other disorder. However, Dr Rimland has noted the results of various people who have used the supplement. The first time DMG was discovered to have a positive effect was in 1965 when two Russians, M G Blumena and T L Belyakova (Rimland, 1990, p.3), wrote about improvements in the speech of 12 out of 15 mentally handicapped children following use of calcium pangamate (also known as pangamic acid, and whose essential factor is DMG). As well as improved vocabulary and the use of simple sentences there was a marked improvement in their general mental state. Following this, the psychiatrist Allan Cott tried pangamic acid on a number of his patients some of whom had autism and many of which responded to the treatment in the same
way as those in Russia. DMG has also been known to improve behaviour of some children and adults. Dr Rimland has written of a father who gave his son one DMG tablet per day which led to a much improved behaviour report from the child’s school. If DMG is used, then the effects should be apparent within a
week, although it should be tried for up to a month to make sure your child responds in a different way.
Is it safe?
A small proportion of children who have received DMG have become hyperactive. This is because they are lacking folic acid which is a possible adjunct to DMG. Administering this could help to stop hyperactivity.

Who could benefit?
It is thought that those with problems such as hyperactivity, sleep disturbances, self-injurious behaviour, diarrhoea, constipation and inflammatory bowel disease may be helped by a gluten and casein free diet.
How successful has this diet proved? Have any studies been done?
Research began in the early 1980s when Herman and Panksepp (Lewis, 1994, p.2) noted similarities in the
behaviour of animals on opioids and the symptoms of autism. Gillberg then produced evidence of people with an increased resistance to pain than the average person having higher levels of endorphin-like substances. At the same time, Reichelt found abnormal peptides in the urine of people with autism. The conclusion they came to was that 50% of people with autism appear to have greater levels of substances with effects akin to opioid peptides. Casein which comes from human or cow milk produces a peptide known as casomorphine which has opioid activities, and gluten from wheat and cereals such as oats and barley whose compounds form gluteomorphins add to the already high level of opioids in the body. Thus, if casein and gluten are removed from or reduced in the diet then the behaviour of people with autism could improve. There have been no official studies carried out to research the scientific basis of this argument, although the researchers interested in this issue have had much positive feedback from parents who have tried this diet on their children. It has also been observed that those children whose autism appears at or around the time of birth may have a problem with casein and those whose autism became apparent later may have a problem with gluten.
Is it safe?
It is essential that any decision on whether to take up such a diet should be made in consultation with a doctor and preferably with a dietician or nutritionist. Although a gluten and casein free diet is not necessarily restrictive, it can be difficult to obtain source ingredients. Initially, the person may display negative side-effects such as stomach upset, anxiety, and slightly bad temper. Reichelt (Lewis, 1994, p.3) argues that these are good signs and should be followed by an improvement within three months.
Therefore the diet should be tried for at least three months to allow it to have any effect.

Who could benefit?
It has been argued that most children with autism, PDD and ADHD have excessive amounts of intestinal yeast, known as candida. Therefore, it is possible that a large number of these children could benefit from a diet free of yeast. Dr Bernard Rimland has mentioned what he considers to be the two major factors for this problem: overuse of antibiotics and too much sugar in the diet.
How successful has this diet proved? Have any tests been done?
It is known that in a healthy intestinal tract bacteria, yeasts, and fungi work together to digest food. Antibiotics destroy both harmful and beneficial bacteria, while allowing the amount of yeast to increase which means that the yeast can thrive by taking up all the food which the person eats. Candida produces enzymes which aid digestion and these can attack the intestinal wall, allowing undigested food to be
absorbed into the bloodstream. This is called “leaky gut”. This causes an increase in peptides which are opiates. Thus, as with the gluten and casein-free diet, the parts of the brain which control speech and behaviour are effected detrimentally. Treatment of this involves a low sugar diet and anti-fungal
compounds has shown benefits in reducing the symptoms of autism and PDD. In particular, an increase in concentration, better sleep patterns, less aggressive and self-destructive behaviour, greater use of speech and improved sociability. Also, a reduction in, or complete removal of, yeast from the diet could be helpful.
Is it safe?
Clearly, such a radical step as removing yeast which is in such a large number of different foods is difficult. It is an extremely restrictive diet and success depends completely on the compliance of the child, understanding of his/her school and relatives. Any form of treatment, including a yeast-free
diet should be done only following tests of the person’s urine and close consultation with a doctor and a dietician to ensure that a well-balanced diet is maintained.

Dr Mary Megson has suggested that natural vitamin A may help people with autism, especially those with vision, sensory perception, language processing, and attention problems. Vitamin A can be found in cold water fish such as salmon and cod, as well as liver, kidney, and milk fat. A useful supplement to take may be cod liver oil. At present, it is not possible to verify this completely, and so we suggest that her ideas be explored further through her website or by writing to her using the addresses below:

Serotonin is a neuro-transmitter which acts on the brain to influence motivation and mood. The observation that levels of 5-HT (serotonin) were sometimes raised in children with autism was first made in 1961 in a study by Richard J. Schain and Daniel X Freedman. Their research found that in approximately 30% children with autism, blood serotonin levels are significantly raised (a condition known as hyperserotonemia). This finding has been validated by many subsequent studies b ut the reasons for it and the ways in which it can be treated have yet to be identified. Further, the relationship between secretion of neuro-transmitters and mood is more subtle than had been previously supposed.

Several drugs have been tried to redress this problem, none of which have been proved to be very successful although some have reported some improvement. After treatment with one of these drugs (fenfluramine) a group of autistic children showed no reduction in their symptoms of autism nor with
any improvement in the intellectual or reasoning abilities. Although its capability to reduce levels of obsessional behaviour and in some cases social functioning was demonstrated.
With regard to diets which may be able to improve the levels of serotonin in people on the autistic spectrum, there are a number of foods that contain high levels. The most common foods are tomatoes, bananas, plums, pecan nuts (among others) and pineapples. Alternatively, if the level of serotonin need to be reduced then these foods could be avoided. Knivsberg (1990) reported that some parents found
that autistic episodes increased when children eat certain foodstuffs (for example bananas) which lends support to the hyperserotonaemia case. It is not clear what the effects of reducing serotonin in the diet would be but if parents wish to experiment with this then we recommend that a dietician or nutritionist is consulted to ensure that a balanced diet is maintained.

This is another intervention which could possibly be useful to someone with autism. At present there is no particular course of homeopathic treatment which is specifically appropriate in treating autism. If you are interested in pursuing this then it is advised that you always see a trained professional who can cater for the individual needs of the person concerned.

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uite ce am citit eu despre astea

Postby nope » Sun Oct 05, 2003 12:07 am

Part 1: The Biochemical/ Nutritional Treatment of Autism/ PDD
In 1995, one of the leading researchers into the field of Autism, Dr. Bernard Rimland, brought together a group of experts to brainstorm the nutritional, genetic and chemical factors that might be involved in Autism and PDD conditions. Their sessions, refined over the years, brought about what has been popularly called the DAN Protocol.

DAN (Defeat Autism Now) is an organization which is a leading research group, centered at the Autism Research Institute. Two members of the original group, Dr. Sidney Baker and Dr. Jon Pangborn were selected to write the actual protocol, using the information that had been developed. Then the full group reviewed the protocol and suggested changes before it was finally published.

One of the key tenants of the DAN Protocol is returning to a diet that is healthy. To quote Dr. Baker, "The American diet is not fit for human consumption." Elimination of refined sugars, junk foods, artificial additives, and the other things that are common in the diet of most children in the United States does nothing to promote good health. Instead it loads their system with unnecessary substances some of which have been shown to be harmful.

A Gluten Free/Casein Free diet is also an important step toward implementing the DAN Protocol. This diet has been shown to have beneficial affects in Autistic children and is a key component of the Protocol. These substances often are found in laboratory blood tests that are done on Autistic children, as well as in urinary peptide tests. The DAN Protocol suggests specific lab testing that should be done, and provides a list of recommended laboratories to do these tests. These labs have been found to provide the best quality information about the test results and help the treating physician determine the priorities that must be addressed in each individual case. It is important to note that each child should be looked at on an individual basis, and there is no "cookie cutter" approach that can be taken for everyone.

Dietary supplementation is also a key ingredient of this treatment method. Many Autistic/PDD children have been found to have deficiencies in various vitamins and minerals. The combination of all of the above factors have been shown to have sometimes dramatic effects on Autistic children, but the people at DAN are the first to admit that it is not a "cure all" and that all improvements may not be solely the result of the protocols. Autism is a complex illness, and there are multiple factors that may influence it's course.

As with any treatment, the Dan Protocol should be undertaken with medical supervision. Part Two of this article will give a basic summary of the protocol in list form and Part Three will give a list of physicians who utilize the DAN Protocol in their practice.

Part 2: A Summary of the DAN Protocol
Recently I was asked a question regarding the DAN (Defeat Autism Now) Protocol, which is gaining popularity. Just what is this method of treatment that's attracting so much attention? The Protocol involves a combination of changes to the diet and implementation of vitamin supplement therapy as a means of producing changes in Autistic behaviors. These changes include the following steps, according to published information.

1. Eliminate dairy products. The introduction of a Casein free diet appears to be primary in the treatment of Autism by means of this Protocol. Instead of cow's milk, substitute rice or soy milk or use Vitamite (chocolate) as a replacement.

2. Eliminate cereal grain products. Gluten has been shown to aggravate the digestive systems of individuals and with the known bowel involvement found in Autistic/PDD children, this action helps to relieve these problems. Instead substitute rice or another product for the Gluten containing wheat.

3. Eliminate junk foods and other food products that contain refined sugars. These are not necessary to good health and in fact have been shown to be harmful, due to their chemical composition and the artificial additives that are included in many of them. A "natural" source of sugar, such as fruit offers a much better alternative.

4. Supplement the diet with the vitamin and mineral therapy. Below is a list of the supplements and their dosages which are recommended:

" Calcium: 300 mg twice a day. This can be done in two doses, or once at bedtime to facilitate sleep.
" Magnesium: 50 mg twice a day
" Vitamin C: 50 mg twice a day
" Vitamin B5: (Pantothenic Acid) 500 mg twice a day
" Vitamin B6: 100 mg twice a day 1 multiple vitamin daily
" DMG: 125 mg twice a day
" Pycnogenol: 50 mg twice a day
" Gaba: 75 mg twice a day

5. If your child is currently taking any medications especially those such as Prozac or Ritalin, it is recommended that you discontinue use before beginning Secretin infusions.

As with any treatment, the DAN Protocol should only be undertaken with medical supervision

iote si traducerea

Postby shakalu » Mon Oct 13, 2003 9:21 am

Inca din 1960 cand interesul in efectele dietei si vitaminelor in tratamentul pentru autism a inceput, au fost facute multe studii in acest sens desi nu neaparat la toate dietele sau la toate vitaminele care ar putea fi folosite.
Deoarece prin toate modalitatile de tratare a autismului este important sa ne amintim ca unele dintre ele vor avea grade variate de succes la anumite persoane si nici un efect la altele.
Este important de asemenea sa subliniem ca in timp experimentele cu vitamine si suplimente este improbabil sa rezulte serioase efecte secundare, consultanta cu doctorul sau un dietecian calificat profesionost pentru orice schimbare de dieta se recomanda neaparat.
Sunt anumite organizatii care pot ajuta printr-o decizie folosirea vitaminelor sau dietelor in tratarea autismului .

Din 1960 cand Dr. Bernard Rimland a infiintat studiul prin folosirea unei doze mari de vitamina B6 impreuna cu o doza normala de magneziu avand ca rezultat o proportie mare de persoane autiste au beneficiat prin luarea vitaminei B6.
Este important sa recunoastem ca numai aceia care au autism cu o nevoie mare de vitamina B6 in mod special pot beneficia de acest tratament.

Au fost publicate aproximativ 20 studii din ’65 si vitamina B6 s-a dovedit benefica la aproximativ 50% din persoanele implicate. Nu a fost complet descoperit de ce vitamina B6 da rezultate in acest sens.
Daca tratamentul este folositor ar trebui sa se observe un efect in cateva zile dar daca nu este nici o schimbare in 3-4 saptamani trebuie oprit.

Mii de copii cu autism au luat tratamentul cu vitamina B6 inca din ’60 fara nici un fel de semne semnificative de efecte secundare.Insa in 1983 Schaumburg a raportat un numar mic de tipare de suferinte si numeroase mancarim la maini si la picioare datorita neuropatiei periferice.Trebuie spus ca acesti copii nu au luat Magneziu care ar trebui intotdeauna administrat ; in cazul in care sunt administrate in doze mari vitamina B6 pentru a preveni efectele secundare datorate terapiei cu vitamine cum ar fi: iritatie ,sensibilitate la sunet si enuresis.Deasemenea ,atunci cand tratamentul cu vitamine este intrerupt sau redus toate simptomele adverse dispar complet.

Magazinele si farmaciile ofera suplimente de Mg si vitamine B6

Vitamina Cne ajuta prin alimentarea creierului sa functioneze corect desi felul in care face acest lucru nu este cunoscut.
Simptomele deficientei de vitamina C include depresia si confuzia ,amandoua fiind simptome comune la persoanele cu autism.
Astfel, persoanele cu autism trebuie sa ia suplimente de vitamina C in anumite cazuri.
Cat de reusita s-a dovedit aceasta dieta?Au fost facute studii?
Majoritatea persoanelor stiu ca vitamina C este capabila de a trata virusi si bacterii dar acestea nu sunt singurele beneficii.
Doua studii pentru efectele suplimentelor de vitamina C la copii cu autism prezinta un interes special. Primul test a fost facut in ’67 de Dr Bernard Rimbland au fost B3, B5, B6 si vitamina C.In acest caz banaficiile tratarii cu vitamina C in autism au fost ascunse de aparentul efect benefic dat de vitamina B6, insa doza vitaminei C era foarte mica si astfel ar fi gresit sa tragem o concluzie din acest test.
Al doilea studiu de vitamina C in autism a fost initiat de Dolske in ’93 .Studiul implica un proces de 30 saptamani de 52 mg/zi la 18 copii cu autism. Cea mai mare doza a produs mai multe rezultate favorabile .

Vitamina C a fost administrata in doze destul de mari fara efect secundar. Totusi are un efect laxativ si daca acest lucru se intampla trebuie oprita administrarea lui .Ca si cu celelalte tratamentul este esential sa fie consultat un medic.

Poate fi luat de la farmacist.

DMG este un supliment de mancare si astfel nu este necesara reteta. Se gaseste in anumite mancaruri : orez in ficat desi in cantitati foarte mici. S-a dovedit a fi folositor la copii cu probleme de comunicare mai ales ai acelora cu dezvoltari minime in vorbire.

Cat de reusita s-a dovedit a fi aceasta dieta? Au fost facute studii?
Nu exista studii oficiale facute de DMG in autism sau in alte disfunctiuni, insa Dr Rimbland a notat rezultatele la diferite persoane care au folosit suplimentul.
Prima data DMG a fost descoperit cu efect pozitiv in ’65 cand doi rusi Mgblumena si Tlbelycova au scris despre imbunatatire in vorbire la 12 din 15 copii cu handicap mental ca urmare a tratamentului cu calcium pangamate ( de asemenea stiut ca acid pangamic) si al carui factor esential este DMG.
De asemenea prin imbunatatiri de vocabular si folosiri de propozitii simple a fost subliniataimbunatatirea starii generale mentale a copiilor.
Ca urmare a acestui lucru psihiatrul Allen Cott a incercat tratamentul pe un numar dintre pacientii sai,unii cu autism si multi dintre acestia au raspuns la tratament in acelasi fel ca cei din Rusia.
DMG a fost recunoscut in imbunatatirea de comportament a unor copii si adulti. Dr. Rimbland a scris despre un tata care-I dadea fiului sau o tableta de DMG/zi care a dus la o imbunatatirea comportamentului copilului la scoala.
Daca DMG este folosit atunci efectele ar trebui sa fie vizibile intr-o saptamana, desi ar trebui incercat pana la 1 luna pentru a ne asigura ca copilul raspunde intr-un mod diferit.

O proportie mica dintre copii care au primit DMG au devenit hiperactivi. Acest lucru are loc deoarece le lipseste acidul folic care este un posibil ajutator de DMG. Tratamentul poate ajuta la oprirea hiperactivitatii.

Se crede ca aceia care au probleme ca hiperactivitatea, nelinistea in somn, comportament autodistructiv ,diaree, constipatie, “boel” inflamat pot fi ajutati printr-o dieta bluten si casein free.
Studiul a inceput in ’90 cand Herman si Panksepp a notat asemanari in comportamentul animalelor si simptomele de autism.
Gillberg atunci a adus dovada unor persoane cu o rezistenta marita la durere comparativ cu persoanele medii avand nivele mai ridicate de endorfina –ca substante.
In acesta Dr. Reichelt a descoperit peptici anormali in urina la persoanele cu autism.
Concluzia la care au ajuns: 50% din persoanele autiste au un nivel mai mare de substante cu efecte “ akin” la pepticii opiozi.
CASEIN care provine din produsele lapte umane sau da la vaci produce peptidele cunoscute ca casomorfina care au : ovaz si “harley” ale carei componente de gluteomorfina se adauga la gradul deja mare de opiozi din organism.
Astfel, daca CASEIN si GLUTEN sunt luate sau reduse in dieta , comportamentul persoanelor cu autism se poate imbunatati.
Au fost facute studii neoficiale pentru a descoperi bazele stiimtifice ale acestui concept ,desi cercetatorii interesati de aceasta metoda au avut o informare pozitiva de la parintii care au incercat aceasta dieta cu copii lor.
S-a observat de asemenea ca acesti copii al caroro autism apare aproximativ in timpul nasterii pot avea probleme cu CASEIN si a caror autism devine vizibilmai tarziu pot avea probleme cu glutenul.
Este esential ca orice decizie pentru a urma o astfel de dieta trebuie consultat doctorul de preferinta cu un nutritionist. Desi o dieta fara gluten sau casein nu este neaparat restrictiva este dificil a se obtine ingrediente de la sursa.
Initial persoanele pot manifesta efecte negative: dureri stomacale, neliniste sau agitatie.
Reichelt considera ca acestea sunt semne bune si o sa se observe imbunatatiri in 3 luni .De altfel, dieta ar trebui incercata pentru cel putin 3 luni pentru a putea avea un efect.
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Postby Guest » Fri Nov 28, 2003 11:56 pm

Astazi am avut si noi assessment-ul. Calin a fost diagnosticat cu autism. Noi incepusem deja dieta fara gluten si fara caseina. Doctorul mi-a spus ca nu o recomanda, ca nu ajuta, ci dimpotriva, lipsa caseinei poate avea efecte adverse asupra dezvoltarii copilului.

Postby casandra » Fri Nov 28, 2003 11:58 pm

eu sunt guest de mai sus. Uitasem sa ma loghez.
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Postby Milena » Wed Dec 03, 2003 1:11 pm

Salut, casandra,

Nu-mi mai amintesc daca ai spus cati ani are Calin... Mie mi se pare o dieta foarte dura, dieta fara caseina si gluten... e greu si pentru tine, ca trebuie sa-ti reconsideri toata bibliografia culinara, dar si pentru copil, ca nu vei putea sa-i dai aproape nimic din ce va vedea prin magazine sau la alti copii. Din experienta noastra, pe care n-o consider lege, desigur, te sfatuiesc sa incepi un program de recuperare prin educatie, structurat, foarte intens. Asta dupa ce, in prealabil, i-ai facut lui Calin o evaluare cat mai exacta si mai revelatoare.
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Postby casandra » Wed Dec 03, 2003 5:58 pm

Buna Milena,

Calin are 3 ani si 7 luni. Deocamdata nu am o evaluare a lui foarte clara, doar diagnosticul. Cum as putea sa il evaluez ? Si eu cred ca o abordare educationala e cea mai corecta, dar nu stiu cum sa incep. Multumesc mult pentru sfaturi.
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Postby Milena » Thu Dec 04, 2003 10:40 am

Calin e mai mic decat Maruta mea cu o luna. Pentru inceput, incearca sa parcurgi testul pe care l-am postat cu ceva timp in urma si vezi care sunt parametrii intre care se situeaza Calin. Il gasesti pe forum, undeva, o sa-ti spun imediat unde exact.
Vorbeste si cu viorex si roaga-l sa-ti trimita si tie Testul Portage. Intre timp, daca reusesti sa-i captezi atentia macar in reprize de cate 2-3 minute, incepe sa lucrezi tu cu el. Vorbeste? Cate cuvinte are in momentul de fata in vocabular?
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Postby casandra » Thu Dec 04, 2003 8:07 pm

Multumesc Milena, am cautat testul pe forum, dar nu l-am gasit. I-am trimis luio Viorex un PM, pentru testul Portage.
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Postby casandra » Thu Dec 04, 2003 11:35 pm

Nu vorbeste.
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Postby Milena » Fri Dec 05, 2003 1:08 pm

Salut, Casandra, Calin nu zice nici o silaba? Nu are niste sunete preferate? Reactioneaza la ceva in mod deosebit? Are vreo preferinta pentru ceva?
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Postby casandra » Fri Dec 05, 2003 7:10 pm

Ba da, cateodata zice mama, tata, incearca sa vorbeasca, dar nu e coerent, nu inteleg ce spune si nu imita cuvintele pe care i le spun. E un copil vesel si afectuos, cauta compania mea si a sotului, indica ceea ce vrea cu mana, am inceput sa il invatam sa foloseasca imagini pentru ceea ce vrea. Se joaca cu lego, dar nu construeiste case sau poduri sau .... Are o memorie foarte buna
Posts: 98
Joined: Fri Oct 31, 2003 6:13 pm

pentru Calin si nu numai

Postby viorex » Fri Dec 05, 2003 9:22 pm

ca sa-mi dau si eu cu parerea zic asa :

- daca tendinta lui Calin e sa mai vorbeasca din cand in cand nu trebuie decat incurajat sa faca asta si daca de felul lui e si vesel e cu atat mai bine, va fi mai usor...
- ca sa faca si mai multe progrese trebuie dus in colectivitate, eu personal am gresit cu Bogdan tinandu-l acasa pana anul asta in toamna ( la 4 ani si jumate), daca as mai avea un copil, la doi ani l-as duce la cresa si anul urmator la gradinita fara sa mai stau pe ganduri ;...
- daca sta cu el acasa o bunica si are inclinatii pedagogice atunci va trebui sa-l antreneze in toate activitatile casei si sa-i dea impresia ca este implicat in ele ca sa invete ce inseamna responsabilitatea;
- si cel mai important mi se pare mie joaca sau jocul pe care trebuie sa-l faci cu el ca pe o terapie, cu lego de ex. eu ma joc cu bogdan, construim imaginativ impreuna - casa, garaje, etc.., la calculator ne jucam impreuna, jucam fotbal in casa, dansam, cantam, vorbim imaginar la telefon, si in general tot ce facem pare o joaca pentru el...
- indiferent daca are autism sau nu, si dincolo de psihologi si testele lor de evaluare, nu uitati ca copilul trebuie sa parcurga niste etape iar jocul si colectivitatea (si de unul singur si cu ceilalti) sunt primordiale in dezvoltarea lui mentala.

Asa ca jucati-va mai mult cu el si fiti mai optimisti... ca sa ma intorc la Calin eu cred ca va vorbi asa cam peste vreun an ( in felul lui desigur) tinand cont ca v-ati pus problema asta de acum.. eu acum patru luni nu stiam mai nimic de autism :? ...

Postby casandra » Sat Dec 06, 2003 1:00 am

Multumesc pentru sfaturi. Calin a stat acasa cu bunica pana la 3 ani, saraca bunica a avut grija de el cum s-a priceput, dar l-a si protejat foarte mult, Calin a avut tot ce a vrut la indemana si nu a fost stimulat sa ceara ceva, pentru ca el avea suc, prajiturele, fructe, jucarii langa el. De teama sa nu oboseasca, sa nu cada, sa nu se ude, sa nu se murdareasca, sa nu raceasca, nici nu a fost implicat in treburile gospodaresti, desi copilul avea tendinta de a ajuta, cand era micut, cel putin, acum si-a pierdut din interes. Acum merge in colectivitate, stiu ca e mai bine decat sa stea acasa, dar cu adevarat nu e integrat, desi educatoarea si ceilalti copii incearca sa il antreneze in jocuri de grup. Din pacate, Calin nu prea e interesat, dar cu toate astea s-a schimbat de cand merge la gradinita. Din fericire, nu e agresiv sau foarte agitat, asa ca a fost acceptat la gradinita. Chiar daca nu e prea atras de jocurile in grup, face ce fac si ceilati copii cand trebuie sa se alinieze sa traca dintr-o sala in alta, sta pe scaun cand i se cere, a invatat sa isi astepte randul....
Cu jocurile imaginative, din pacate, nu am progresat. Tare mi-ar placea si mie sa construim case, dar cand ne jucam Lego, Calin accepta sa faca doar stive, apoi le demoleaza si o ia de la inceput.
Posts: 98
Joined: Fri Oct 31, 2003 6:13 pm


Postby luminita » Thu Jan 22, 2004 10:25 am

A incercat cineva dieta cu DMG ,calciu si vitamine :?:
Posts: 10
Joined: Thu Dec 11, 2003 9:13 am



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